Monday, August 5, 2013

First Knee Surgery

It's been a long couple of months but here is what is going on with me and my knee situation: On Wednesday, I had my right knee scoped to remove 30+ bits of bone. The surgery went very well and other than the typical swelling, the clicking is gone and it almost feels better today. I am guessing the cause may have to do with My liver enzymes were a bit high, probably due to pain meds, so I am off of soriatane for now. My skin is not very happy.

Friday, May 3, 2013

Knee Pain and shots

Last Week, I just had my third set of Synvisc(http://info.synviscone.com) injections. My knee looks puffy and swollen. Hopefully, I will be pain free in a few weeks. People online seem to indicate that it can take up to 5 weeks for the treatment to have full effect. It's funny to imagine how old I feel. Last winter, I went hunting with some friends, ages 32, 51 and 55 and I was the slowest walker, because of knee pain. it's also aggravating that I can't chase the kids outside like I want. So I am hoping this treatment works because I am tired of being an old man at age 44. What does this have to do with Ichthyosis? When I was younger, I was on much higher doses of Accrtane, I take Soriataine now, and this caused some bone spurs along my back, ancle and hip. I also think this caused the cartilage in my knees to wear out prematurely. I am on much smaller doses now and track bone growth much more closely. I'd also like say hello to a fellow Ichthyosis blogger. http://fishyskin.blogspot.com/2012/11/channel-4-tv-medical-episode.html?showComment=1367596599383#c8732460303905520148

Monday, November 19, 2012

Thanksgiving week.

Well, it's that time of year and I am getting ready to host Thanksgiving dinner.  This year I have a lot to be thankful for as I am still healthy enough to continue skating as a referee for MIR.  Alieve and Glucosomine are now a food group for me.  My menu is going to include Alton Brown's recipe for turkey that is brine-ed before cooking.  Last year it was a huge hit and made a turkey that looked as good as it tasted.

Alton's link:  http://www.foodnetwork.com/recipes/alton-brown/good-eats-roast-turkey-recipe/index.html

Last night was Mid Iowa Roller's "fresh meat" clinic and I saw a few familiar faces.  It looks like a few girls are joining us other local teams.  I guess it's to be expected.  There is no school tonight, so I am going to finally attend a Monday practice.  It should be fun :-)  I've been stressed out and could use the release and skating with the A-team should tire me out really good.  

Tuesday, September 25, 2012

More from "Head-wound Harry" :-)

I just got back from my dermatologist who has been taking care of my head wound issue and I am glad I did not go for the skin graft revision by the plastics guy.  She is very impressed with my healing progress and has even seen little hairs starting to grow!  I am considering myself very lucky to be healing so well :-)

On the Ichthyosis front, I have more good news.  I did my lipid panel and the numbers are all good.  I can stay on Soriatane.  I am also going to try out Fluocinolone acetonide body oil topically to see if I can get some better results.  I am still using the Ammonium lactate 12% lotion as well as truckloads of petroleum jelly and Palmers' cocoa butter formula lotion to stay lubricated.  I will update my results with some pictures soon.     

If anyone is in Iowa this weekend, I will be at the Iowa Events Center (HyVee Hall) to referee the Derby Brats as part of the Mid Iowa Rollers vs Des Moines Derby Dames.  These are the premiere teams in Central Iowa and it should be a great show.  

Saturday, September 1, 2012

Healing

It's been a while, but I'm writing to talk about injuries and healing after surgery or accidents.  In my case, it's an injury to the scalp that needed fourteen stitches to reattach a large flap of skin and hair.  After about a week, it started to get infected so they put me on antibiotics and washing my hair in Hibiclens Antiseptic/antimicrobial skin cleaner.

I started taking some things into my own hands because nobody seemed to want to cut the mass of dried blood and hair that I thought was making matters worse because it was smelling underneath so I cut it off, hair only to reveal a bald spot and a large wound.  I also went to a plastic surgeon who wanted to do a skin graft to cover the sore.  He did not like the idea of operating on me while I was taking Soriatane, so he sent me to a Dermatologist for a second opinion.

Her opinion was less drastic and she wants to see how things heal on their own.  So She sent me home with a skin healing cream, called Biofine, after almost a week, it seems to be working.  Let's hope for the best :-)  I may even get my hair to start growing back.    

Friday, June 1, 2012



One thing about retenoid medications like Soriatane is that you cannot skip a dose, like I did this week, it allows more skin to stick to you, rather than exfoliate like you want it to.  luckily, it has not been so oppressively hot here in Des Moines this week so sweating has not been an issue.  It's kind of weird looking forward to a good sweat when it seems the rest of the world is trying avoid it.  If they only knew what it's like not to sweat, I think they would have a better appreciation for their perspiration.  Also, sunscreen is your friend because getting tan, just increases the appearance of the dry skin. 

One of the better dandruff shampoos I've tried recently has been the one made by AXE of all brands.  I've really noticed it after I refereed my last derby bouts for the Oskaloosa Mayhem Girls and my helmet and hair were soaking wet afterwards.

Now here's a great sport that is growing like crazy here in the mid-west.  Roller derby is back and growing.  It has to be the most fun I've had since being a kid and I just referee.  It's been great therapy for me because it's been great to get me out of the shell.  I got started when my friends who kate for OMG, asked me and their husbands to volunteer, before I knew it, I was handed a rulebook and asked to officiate.  You don't take the abuse of the players but the rules say that you still need the same safety equipment.  It's gotten me to be more active also.     

Thursday, May 31, 2012

Back to School


Hello, I haven't blogged in a while but I thought I would restart things.  I’ve restarted school at William Penn, in West Des Moines and so far, so good.  The next class is Accounting which is a very different way of thinking for me.  It makes me feel like an idiot in that I still confuse debits and credits with the way it is in a checkbook, not so in business accounting.  

The new condo is coming along nicely.  I finally put some seating in the living room and set up the surround sound.  Now to start building my local social circle; I have a few new friends in the areawho are helping me get out of my shell and dress less like an IT nerd and fit into people who are outside of the technology scene.     

My Ichthyosis is doing well but the shedding of skin is still a royal pain in the ass.  I’ve started using different skin care products, such as Cetaphil Cleanser and St Ives Apricot scrub.  These help me to appear more human and less reptilian.  J  I’ve found that you have to have a sense of humor with these things or you will go crazy.   

Next month is my 25th class reunion in Columbus, Ohio.  It’s going to be great to see some old friends I’ve reconnected with in the past couple of years. I was hoping to take the Mercedes again but she got a boo boo from some kid tailgating me.  So I'm going to be driving the mini-van out.